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UK-PBC National Audit: a collaborative success in identifying critical shortfalls
  1. Laura Burke1,
  2. Steven Flack2,
  3. Rebecca L Jones1,
  4. Richard J Aspinall3,
  5. Michael A Heneghan4,
  6. Doug Thorburn5,
  7. David EJ Jones6,
  8. Conor Braniff7,
  9. Collette Thain8,
  10. Andrew Yeoman9,
  11. Joanna A Leithead10,
  12. Palak Trivedi11,
  13. George Mells12,
  14. Laith Alrubaiy13
  15. on behalf of the UK-PBC audit Steering Committee
  1. 1 Leeds Liver Unit, Leeds Teaching Hospitals NHS Trust, Leeds, UK
  2. 2 PBC Research Unit, Cambridge University, Cambridge, UK
  3. 3 Gastroenterology & Hepatology, Portsmouth Hospitals NHS Trust, Portsmouth, UK
  4. 4 Institute of Liver Studies, King's College Hospital, London, UK
  5. 5 Department of Hepatology, Royal Free Hospital, London, UK
  6. 6 Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK
  7. 7 Belfast Health and Social Care Trust, Belfast, Northern Ireland, UK
  8. 8 PBC Foundation, Edinburgh, UK
  9. 9 Gwent Liver Unit, Aneurin Bevan Health Board, Newport, UK
  10. 10 Forth Valley Royal Hospital, Larbert, UK
  11. 11 Liver Unit, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
  12. 12 Academic Department of Medical Genetics, University of Cambridge, Cambridge, UK
  13. 13 Gastroenterology, St Mark's Hospital and Academic Institute, London, UK
  1. Correspondence to Dr Laura Burke, Leeds Liver Unit, Leeds Teaching Hospitals NHS Trust, Leeds LS16 5BL, UK; laura.burke1{at}nhs.net

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We write to update you on further work conducted since the publication by Sivakumar et al 1 that assessed the quality of care for patients with primary biliary cholangitis (PBC) in the UK. This work was initiated following the publication of updated guidelines on PBC management by the British Society of Gastroenterology (BSG) in 2018.2 The pilot audit of 790 patients, from 11 National Health Service (NHS) hospitals in the UK, demonstrated significant shortcomings in carewith the majority of hospitals not meeting the recommended BSG audit standards. Notably, disparities were …

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Footnotes

  • Twitter @laura_eburke, @GwentLiverUnit

  • Collaborators UK-PBC audit Steering Committee.

  • Contributors LB drafted the letter. All other authors reviewed and contributed to revisions of the draft and are members of the UK-PBC audit steering committee.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.

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