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Original research
Measuring patient and carer experience related to paediatric gastrointestinal endoscopy: multicentre questionnaire study
  1. Jessica Wai Yan Wan1,
  2. Elizabeth Griffiths1,
  3. Rosalind Rabone1,
  4. Zahmeena Zuhair1,
  5. Zuzana Londt2,
  6. David Rawat2,
  7. Janis Maginnis3,
  8. Amal Elzubair3,
  9. Anna Pigott3,
  10. Mike Thomson1,
  11. Priya Narula1
  1. 1Department of Paediatric Gastroenterology, Sheffield Children's Hospital, Sheffield, South Yorkshire, UK
  2. 2Department of Paediatric Gastroenterology, Royal London Hospital, London, UK
  3. 3Department of Paediatric Gastroenterology, Royal Stoke University Hospital, Stoke-on-Trent, Staffordshire, UK
  1. Correspondence to Dr Priya Narula, Paediatric Gastroenterology, Sheffield Children's Hospital, Sheffield, South Yorkshire, UK; priya.narula{at}nhs.net

Abstract

Background The Paediatric Endoscopy Global Rating Scale (P-GRS) is a quality improvement tool used in the UK. An important aspect of this includes regular surveys on the patient and/or carer’s endoscopy experience. The aim of our study was to design and implement a patient/carer experience questionnaire.

Methods This questionnaire was designed to obtain feedback on patient and/or carer satisfaction with their endoscopy experience. Question selection was based on relevant measures in the endoscopy Global Rating Scale, with input from clinical governance, Patient Advice and Liaison Service and a hospital youth forum. This was distributed to patients and/or carers in three UK paediatric endoscopy services during six surveys between 2013 and 2018. Data were then collated and analysed on Microsoft Excel for Office 365 MSO (16.0.11901.20070).

Results Overall, 830 endoscopic procedures occurred during the six survey periods. 270 questionnaires were returned. Feedback from the questionnaires were mostly positive (overall satisfaction rated ‘excellent’ or ‘good’ was seen in 87% of responses) but also identified areas of improvement, such as in managing postprocedure pain and having a separate space for adolescents for preprocedure discussions. Improvements in satisfaction scores were noted in one unit over time, particularly in preprocedure preparation (from 86% to 100%), and overall satisfaction with endoscopy experience (81%–100%).

Conclusion All three paediatric endoscopy services found this questionnaire useful in identifying areas needing improvement and in demonstrating compliance with measures within the P-GRS quality of patient experience domain. Further work includes exploring ways to increase response rates, as well as developing age-appropriate and electronic versions.

  • paediatric gastroenterology
  • gastrointesinal endoscopy
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Footnotes

  • Contributors The study was planned by PN. PN and EG designed the initial questionnaire, which has been refined and condensed with subsequent use. EG conducted studies A-1 and A-2; JWYW conducted study A-3; and RR and ZZ conducted study A-4, all under the supervision of PN at Sheffield Childrens Hospital. ZL conducted study B at the Royal London Hospital under the supervision of DR. JM and AE conducted study C at Royal Stoke University Hospital under the supervision of AP. JWYW collated all datasets from coauthors. JWYW wrote and submitted the article with PN’s supervision. MT provided critical review of the article.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Ethics approval Each unit secured approval from their local clinical governance committees before data collection. This project did not require ethics committee approval as this was a service evaluation questionnaire and the local governance committee mandates approval of all patient questionnaire surveys by Patient Advice and Liaison Service.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data availability statement All data relevant to the study are included in the article or uploaded as supplementary information. Data and individual questionnaires used in each study may be obtained upon request.

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