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UK-PBC National Audit: a collaborative success in identifying critical shortfalls
  1. Laura Burke1,
  2. Steven Flack2,
  3. Rebecca L Jones1,
  4. Richard J Aspinall3,
  5. Michael A Heneghan4,
  6. Doug Thorburn5,
  7. David EJ Jones6,
  8. Conor Braniff7,
  9. Collette Thain8,
  10. Andrew Yeoman9,
  11. Joanna A Leithead10,
  12. Palak Trivedi11,
  13. George Mells12,
  14. Laith Alrubaiy13
  15. on behalf of the UK-PBC audit Steering Committee
  1. 1Leeds Liver Unit, Leeds Teaching Hospitals NHS Trust, Leeds, UK
  2. 2PBC Research Unit, Cambridge University, Cambridge, UK
  3. 3Gastroenterology & Hepatology, Portsmouth Hospitals NHS Trust, Portsmouth, UK
  4. 4Institute of Liver Studies, King's College Hospital, London, UK
  5. 5Department of Hepatology, Royal Free Hospital, London, UK
  6. 6Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK
  7. 7Belfast Health and Social Care Trust, Belfast, Northern Ireland, UK
  8. 8PBC Foundation, Edinburgh, UK
  9. 9Gwent Liver Unit, Aneurin Bevan Health Board, Newport, UK
  10. 10Forth Valley Royal Hospital, Larbert, UK
  11. 11Liver Unit, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
  12. 12Academic Department of Medical Genetics, University of Cambridge, Cambridge, UK
  13. 13Gastroenterology, St Mark's Hospital and Academic Institute, London, UK
  1. Correspondence to Dr Laura Burke, Leeds Liver Unit, Leeds Teaching Hospitals NHS Trust, Leeds LS16 5BL, UK; laura.burke1{at}nhs.net

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We write to update you on further work conducted since the publication by Sivakumar et al1 that assessed the quality of care for patients with primary biliary cholangitis (PBC) in the UK. This work was initiated following the publication of updated guidelines on PBC management by the British Society of Gastroenterology (BSG) in 2018.2 The pilot audit of 790 patients, from 11 National Health Service (NHS) hospitals in the UK, demonstrated significant shortcomings in carewith the majority of hospitals not meeting the recommended BSG audit standards. Notably, disparities were …

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Footnotes

  • Twitter @laura_eburke, @GwentLiverUnit

  • Collaborators UK-PBC audit Steering Committee.

  • Contributors LB drafted the letter. All other authors reviewed and contributed to revisions of the draft and are members of the UK-PBC audit steering committee.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.