TY - JOUR T1 - Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK JF - Frontline Gastroenterology JO - Frontline Gastroenterol DO - 10.1136/flgastro-2019-101260 SP - flgastro-2019-101260 AU - Rukshana Kapasi AU - Jackie Glatter AU - Christopher A Lamb AU - Austin G Acheson AU - Charles Andrews AU - Ian D Arnott AU - Kevin J Barrett AU - Graham Bell AU - Guaraang Bhatnagar AU - Stuart Bloom AU - Matthew James Brookes AU - Steven R Brown AU - Nicola Burch AU - Andy Burman AU - Kay Crook AU - JR Fraser Cummings AU - Justin Davies AU - Anne Demick AU - Jenny Epstein AU - Omar Faiz AU - Roger Feakins AU - Melissa Fletcher AU - Vikki Garrick AU - Bruce Jaffray AU - Matthew Johnson AU - Katie Keetarut AU - Jimmy Limdi AU - Uchu Meade AU - Rafeeq Muhammed AU - Andrew Murdock AU - Nick Posford AU - Georgina Rowse AU - Ian Shaw AU - Anja St Clair Jones AU - Stuart Taylor AU - Sean Weaver AU - Lisa Younge AU - Antony Barney Hawthorne Y1 - 2019/07/19 UR - http://fg.bmj.com/content/early/2019/07/19/flgastro-2019-101260.abstract N2 - Objective Symptoms and clinical course during inflammatory bowel disease (IBD) vary among individuals. Personalised care is therefore essential to effective management, delivered by a strong patient-centred multidisciplinary team, working within a well-designed service. This study aimed to fully rewrite the UK Standards for the healthcare of adults and children with IBD, and to develop an IBD Service Benchmarking Tool to support current and future personalised care models.Design Led by IBD UK, a national multidisciplinary alliance of patients and nominated representatives from all major stakeholders in IBD care, Standards requirements were defined by survey data collated from 689 patients and 151 healthcare professionals. Standards were drafted and refined over three rounds of modified electronic-Delphi.Results Consensus was achieved for 59 Standards covering seven clinical domains; (1) design and delivery of the multidisciplinary IBD service; (2) prediagnostic referral pathways, protocols and timeframes; (3) holistic care of the newly diagnosed patient; (4) flare management to support patient empowerment, self-management and access to specialists where required; (5) surgery including appropriate expertise, preoperative information, psychological support and postoperative care; (6) inpatient medical care delivery (7) and ongoing long-term care in the outpatient department and primary care setting including shared care. Using these patient-centred Standards and informed by the IBD Quality Improvement Project (IBDQIP), this paper presents a national benchmarking framework.Conclusions The Standards and Benchmarking Tool provide a framework for healthcare providers and patients to rate the quality of their service. This will recognise excellent care, and promote quality improvement, audit and service development in IBD. ER -