RT Journal Article SR Electronic T1 Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK JF Frontline Gastroenterology JO Frontline Gastroenterol FD BMJ Publishing Group Ltd SP 178 OP 187 DO 10.1136/flgastro-2019-101260 VO 11 IS 3 A1 Rukshana Kapasi A1 Jackie Glatter A1 Christopher A Lamb A1 Austin G Acheson A1 Charles Andrews A1 Ian D Arnott A1 Kevin J Barrett A1 Graham Bell A1 Guaraang Bhatnagar A1 Stuart Bloom A1 Matthew James Brookes A1 Steven R Brown A1 Nicola Burch A1 Andy Burman A1 Kay Crook A1 JR Fraser Cummings A1 Justin Davies A1 Anne Demick A1 Jenny Epstein A1 Omar Faiz A1 Roger Feakins A1 Melissa Fletcher A1 Vikki Garrick A1 Bruce Jaffray A1 Matthew Johnson A1 Katie Keetarut A1 Jimmy Limdi A1 Uchu Meade A1 Rafeeq Muhammed A1 Andrew Murdock A1 Nick Posford A1 Georgina Rowse A1 Ian Shaw A1 Anja St Clair Jones A1 Stuart Taylor A1 Sean Weaver A1 Lisa Younge A1 Antony Barney Hawthorne YR 2020 UL http://fg.bmj.com/content/11/3/178.abstract AB Objective Symptoms and clinical course during inflammatory bowel disease (IBD) vary among individuals. Personalised care is therefore essential to effective management, delivered by a strong patient-centred multidisciplinary team, working within a well-designed service. This study aimed to fully rewrite the UK Standards for the healthcare of adults and children with IBD, and to develop an IBD Service Benchmarking Tool to support current and future personalised care models.Design Led by IBD UK, a national multidisciplinary alliance of patients and nominated representatives from all major stakeholders in IBD care, Standards requirements were defined by survey data collated from 689 patients and 151 healthcare professionals. Standards were drafted and refined over three rounds of modified electronic-Delphi.Results Consensus was achieved for 59 Standards covering seven clinical domains; (1) design and delivery of the multidisciplinary IBD service; (2) prediagnostic referral pathways, protocols and timeframes; (3) holistic care of the newly diagnosed patient; (4) flare management to support patient empowerment, self-management and access to specialists where required; (5) surgery including appropriate expertise, preoperative information, psychological support and postoperative care; (6) inpatient medical care delivery (7) and ongoing long-term care in the outpatient department and primary care setting including shared care. Using these patient-centred Standards and informed by the IBD Quality Improvement Project (IBDQIP), this paper presents a national benchmarking framework.Conclusions The Standards and Benchmarking Tool provide a framework for healthcare providers and patients to rate the quality of their service. This will recognise excellent care, and promote quality improvement, audit and service development in IBD.