Question | Total | Options | Responses | % |
---|---|---|---|---|
1. Are you clear about which patients need to be referred to a clinical genetics service? | 382 | Yes | 240 | 63 |
No | 62 | 16 | ||
Sometimes | 74 | 2 | ||
Other | 6 | |||
2. Which MDT member has responsibility for managing patients with CRC with an elevated inherited risk? | 380 | Gastroenterologist | 85 | 22 |
Colorectal surgeon | 144 | 38 | ||
Oncologist | 20 | 5 | ||
Clinical geneticist | 62 | 16 | ||
Other | 69 | 18 | ||
3. Do you have a family history of bowel cancer clinic? | 380 | Yes | 159 | 42 |
No | 221 | 58 | ||
4. Who leads this clinic? | 156 | Gastroenterologist | 24 | 15 |
Colorectal surgeon | 28 | 18 | ||
Nurse specialist | 18 | 12 | ||
Clinical geneticist | 84 | 54 | ||
Other | 2 | 1 | ||
5. Do you keep a screening registry for high risk patients? | 312 | Yes | 210 | 67 |
No | 42 | 14 | ||
Unaware | 60 | 19 | ||
6. Do you arrange tumour testing for Lynch syndrome in young patients (aged <50 years)? | 378 | Always | 122 | 32 |
Usually | 56 | 15 | ||
Rarely | 52 | 14 | ||
Never | 72 | 19 | ||
Unaware | 76 | 20 | ||
7. Do you feel that you have an adequate clinical genetics service? | 380 | Yes | 262 | 69 |
No | 92 | 24 | ||
Other | 26 | 7 | ||
10. Are you a …? | 382 | Gastroenterologist | 163 | 43 |
Colorectal surgeon | 144 | 38 | ||
Oncologist | 58 | 15 | ||
Other | 17 | 4 |
Some questions are paraphrased for presentation reasons, please refer to the ‘design and setting’ section for the full versions.
CRC, colorectal cancer; MDT, multidisciplinary team.