Table 1

Responses to the survey questions 1–7 and 10

QuestionTotalOptionsResponses%
1. Are you clear about which patients need to be referred to a clinical genetics service?382Yes24063
No6216
Sometimes742
Other6
2. Which MDT member has responsibility for managing patients with CRC with an elevated inherited risk?380Gastroenterologist8522
Colorectal surgeon14438
Oncologist205
Clinical geneticist6216
Other6918
3. Do you have a family history of bowel cancer clinic?380Yes15942
No22158
4. Who leads this clinic?156Gastroenterologist2415
Colorectal surgeon2818
Nurse specialist1812
Clinical geneticist8454
Other21
5. Do you keep a screening registry for high risk patients?312Yes21067
No4214
Unaware6019
6. Do you arrange tumour testing for Lynch syndrome in young patients (aged <50 years)?378Always12232
Usually5615
Rarely5214
Never7219
Unaware7620
7. Do you feel that you have an adequate clinical genetics service?380Yes26269
No9224
Other267
10. Are you a …?382Gastroenterologist16343
Colorectal surgeon14438
Oncologist5815
Other174
  • Some questions are paraphrased for presentation reasons, please refer to the ‘design and setting’ section for the full versions.

  • CRC, colorectal cancer; MDT, multidisciplinary team.