Question number | Synoptic form of question | N* | n | % Negative experience (crude) n/N | Adjusted ORs of negative experience by route† | Size of variation by route (max OR/min OR) | P values (for overall variation across the four studied routes) | |||
Emergency presentation | Elective referral | Two-Week-Wait referral (reference) | Screening detection | |||||||
15 | Written info on cancer diagnosis | 5610 | 1495 | 27 | 2.85 | 1.29 | 0.56 | 5.09 | <0.0001 | |
30 | Staff explained operation—before | 4944 | 802 | 16 | 2.44 | 1.04 | 0.53 | 4.60 | <0.0001 | |
20 | Given name of specialist nurse | 6348 | 651 | 10 | 2.96 | 1.38 | 0.76 | 3.89 | <0.0001 | |
13 | Told diagnosis sensitively | 6689 | 1025 | 15 | 1.93 | 1.50 | 0.70 | 2.76 | <0.0001 | |
35 | Confidence in hospital doctor | 5331 | 716 | 13 | 1.69 | 1.03 | 0.63 | 2.68 | <0.0001 | |
43 | Thought info withheld | 5312 | 710 | 13 | 1.91 | 1.30 | 0.98 | 1.95 | <0.0001 | |
49 | Written info at discharge | 4962 | 1050 | 21 | 1.51 | 1.03 | 0.83 | 1.82 | <0.0001 | |
32 | Staff explained operation—after | 4988 | 1134 | 23 | 1.60 | 1.05 | 0.89 | 1.80 | <0.0001 | |
19 | Shared decision making | 4899 | 1283 | 26 | 1.41 | 1.19 | 1 | 0.85 | 1.66 | 0.0001 |
40 | Confidence in ward nurse | 5326 | 1977 | 37 | 1.18 | 1.19 | 0.79 | 1.51 | 0.0001 | |
18 | Written info about treatment side effects | 6080 | 795 | 13 | 1.38 | 1.26 | 0.93 | 1.48 | 0.0063 | |
63 | Information given to general practitioner | 5243 | 328 | 6 | 1.18 | 0.84 | 0.82 | 1.44 | 0.17 | |
51 | Self-management info postdischarge family/others | 4631 | 1942 | 42 | 1.17 | 1.03 | 0.81 | 1.44 | 0.20 | |
65 | Cancer care integration | 6347 | 2389 | 38 | 1.20 | 1.21 | 0.85 | 1.42 | 0.0001 | |
64 | General practice staff support | 4587 | 1337 | 29 | 1.22 | 1.34 | 1.28 | 1.34 | 0.0015 | |
60 | Waiting time as outpatient | 5983 | 1755 | 29 | 1.17 | 1.15 | 0.87 | 1.34 | 0.012 | |
21 | Ease of contacting specialist nurse | 5160 | 1120 | 22 | 0.88 | 1.05 | 0.89 | 1.18 | 0.29 | |
58 | Emotional support as outpatient | 4529 | 1176 | 26 | 1.07 | 1.08 | 0.97 | 1.11 | 0.72 |
In columns 6-9, values shown in underlined fonts indicate the worst and those in bold fonts the best comparative experience across the four studied routes. In column 10 (size of overall variation between routes) bold fonts indicate questions with evidence p≤0.02).
*N varied by question, ranging from 4529 (emotional staff support as outpatient—Q58) to 6689 (told diagnosis sensitively—Q13) because some questions were not applicable to all patients.
†Adjusted for sex, age group, deprivation quintile, white/non-white ethnicity and colon/rectal subsite.