Article Text
Abstract
Introduction Liver disease deaths are rising, but specialist palliative care services for hepatology are limited. Expansion across the NHS is required.
Methods We surveyed clinicians, patients and carers to design an ‘ideal’ service. Using standard NHS tariffs, we calculated the cost of this service. In hospitals where specialist palliative care was available for liver disease, patient-level costs and bed utilisation in last year of life (LYOL) were compared between those seen by specialist palliative care before death and those not.
Results The ‘ideal’ service was described. Costs were calculated as whole time equivalent for a minimal service, which could be scaled up. From a hospital with an existing service, patients seen by specialist palliative care had associated costs of £14 728 in LYOL, compared with £18 558 for those dying without. Savings more than balanced the costs of introducing the service. Average bed days per patient in LYOL were reduced (19.4 vs 25.7) also intensive care unit bed days (1.1 vs 1.8). Despite this, time from first admission in LYOL to death was similar in both groups (6 months for the specialist palliative care group vs 5 for those not referred).
Conclusions We have produced a template business case for an ‘ideal’ advanced liver disease support service, which self-funds and saves many bed days. The model can be easily adapted for local use in other trusts. We describe the methodology for calculating patient-level costs and the required service size. We present a financially compelling argument to expand a service to meet a growing need.
- cirrhosis
- health economics
- liver cirrhosis
Data availability statement
All data relevant to the study are included in the article or uploaded as supplementary information.
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Data availability statement
All data relevant to the study are included in the article or uploaded as supplementary information.
Footnotes
Twitter @marktheliverdoc
Contributors MW conceived the study and wrote the manuscript. MW is the guarrantor for the work. SW and HS extracted the data and wrote the business cases. BH, SV, JV, WP, FF, AJS established the questions for the service design and contributed to the manuscript.
Funding We received a small educational grant from NHSI to fund the work of an NHS graduate management trainee (SW) to obtain the patient level costing data and produce the business case.
Competing interests None declared.
Provenance and peer review Not commissioned; externally peer reviewed.
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